Category Archives: family caregivers


Getting Better Takes Commitment

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The title of this post can mean a lot of things. If we are ill, we have to commit to getting better, being compliant with medications and clinicians guidance, making the effort. If we are golfers, it means beating balls, … Continue reading


More Dangerous in or out of Hospital?

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Last year, Forbes published an article that those of us in elder care and home care already understood very well. The article, by Robert J. Szczerba (@RJSzczerba), talks about the fact that coming home from the hospital can be a … Continue reading


NAIPC Recommendations – Aging in Place

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In my last post, I talked about the National Aging in Place Council annual meeting and some of the findings presented there, including some excellent work from the folks at Georgia Tech. There are a number of “possible solutions” – … Continue reading


Nurses Take Step Forward!

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An article at takes a big step in the right direction, concerning making Electronic Health Records (EHR) more valuable in the provision of health care. The American Academy of Nursing issued a policy statement that EHR “are incomplete and … Continue reading


Daughters and Sons as #Caregivers

An interesting – but not surprising – article in starts with the headline, “Daughters Care Twice as Much for Their Parents, Compared to Sons“. I am sure that title did not refer to emotional attachment, but to the level … Continue reading


It Just Keeps Getting Better

I have written several posts recently about our experience applying the Music & Memory program to our home care services at Support For Home In-Home Care. I continue to smile and appreciate what our Home Care Aides are doing with … Continue reading

Caregiver Guilt

Dementia Today is a pretty darn good blog side for folks in our industry – and for families – to check out now and then. In a recent posting, they talk about some research out of the Mayo Clinic, involving issues of guilt felt by caregivers caring for folks with dementia. The gist of the research is that such caregivers are carrying around a whole lot of guilt that they should not feel. Of course, “should” and “should not” are the two most useless examples of advice in the history of humankind. We should not use them! 🙂

Elder Care and Home Care Services

The fact is, what we feel, as caregivers, is real. The old cliche that “Perception is reality” is all too true about this issue. Here are some of the types of guilt that dementia caregivers are carrying around:

  • Guilt over realizing how they treated or judged the person with dementia before knowing what was going on (before diagnosis)
  • Guilt that somehow they are not caregiving as well as they should, or that others do a better job
  • Guilt over feeling resentful, trapped, unloving, or a host of other negative thoughts
  • Guilt for wanting time for themselves, for using respite care so they can have a break
  • Guilt for doing things without their loved one that they once enjoyed together
  • Guilt for not visiting enough
  • Guilt for wishing it was over
  • And there’s at least one more I must mention, caregivers may feel guilty for not feeling guilty.

Some of these issues hold great value as teachable moments for all of us. The very first one is a great example. How many families have just wanted (or told) Mom or Dad to just act normal, and then learned that it was Alzheimer’s or Vascular Dementia or Dementia with Lewy Bodies that was the real issue – and that Mom or Dad was never again going to be the same person who raised them.

Every family needs to study the aging experience, including the issues of dementia and other diseases associated with unhealthy aging. Preparation is vital.

In the meantime, families facing the issues of caring for a dementia sufferer need to move beyond wishing and guilt to getting support and taking action. We at Support For Home and other high quality, high integrity elder care agencies can be a big help in that effort.

Your experiences are welcome.

Best wishes. Bert